Simon had his 18 month visit with 'the' family doctor today. 'The' family doctor who is looking after Pablo, me, and everyone else in my family. After Simon's appointment was done the doctor spent some time with Pablo and he's on some new meds (Valproic Acid and Oxycocet) to hopefully make his days more tolerable.
His 18 month stats are:
length - 88 cm / 2' 11''
weight - 30 lbs
head circumference - 50 cm / 19.7''
He had 2 more vaccinations and AGAIN, didn't get upset or cry. He still doesn't talk besides 'mama' and 'dada' which he's been saying for awhile so the doctor asked if his hearing appears to be fine and we said yes. She also asked how much Isabella talks and Pablo and I started laughing. We explained how Isabella talks non-stop from the moment she gets up till she goes to sleep so maybe Simon figures she's talking enough for the both of them...LOL. We need to be very repetitive with words when we're talking to Simon and keep on top of it for the next little while. If he gets to his second birthday without talking then we'll have to figure out what the problem is. He's just such a chilled out kid that I think he's just not quite ready yet...
Moving on to Pablo...
(this part was written by Pablo and edited by yours truly)
On Sunday night was the first of an 'episode'. My right leg gave out in the backyard at the in-laws and I had a hard time making it into the house, where at that point I could not even lift my arm above my shoulder. I also felt like someone was sitting on my chest, making it difficult to breathe. Then my head felt like it was floating away from my body which made me feel very disoriented. All of this lasted intensely for only minutes but remained stagnant for a couple hours.
Tuesday: while at Julia's work, the same symptoms as on Sunday started happening, and continued. Both of these episodes have been declared seizures from my family doctor and surgeon, and if I even begin to feel like that again, I am to go straight to emergency.
New constant symptoms: hearing my heartbeat clicking in the left side of my head. Body tremors from my ankles to my neck, especially while trying to fall asleep. If the wind blows into my left ear it feels like its swirling around inside my head. Spot specific headaches. Right on the top, feels like someone is taking a butcher knife in and out of my head, with piercing pains. The original pulsating headaches in the back left of my head have come back. These two headaches take turns, and one or the other seems to be on an hourly basis.
I've come off of alot of pills since Sunday. Painkillers, Sunday night and the steroids on Monday. This has lead to the worst pains and uncomfortableness since the surgery itself. I am physically drained 24 hours a day now, and have a hard time walking around the block with the family, although tonight got a few blocks in. I can feel fatigue coming on about half an hour before needing to pass out, due to the joint and muscle pain and the dull full body pain. After sleeping anywhere from half an hour to two hours, getting up is even harder and more painful. The worst feeling since the headaches the two days following the surgery. They (the internet) say this should only last another 5-7 days, which seems like a lifetime right now. My blood work for the anti-seizure medication came back way too low at 22 (40-80 is the therapeutic range). I will be tested again next Tuesday as the dosage was bumped from 300 to 400mg a day. I must add too, that after doing my homework, I am slightly leaning towards the radiation route then having them go back in and remove that part of the brain. GO BRAINS GO!!!